Lipedema Giving Smarter Guide

Lipedema is a chronic, progressive condition that primarily affects women, characterized by a painful and symmetrical accumulation of fat and swelling in the limbs. Despite its significant impact, lipedema remains poorly understood, with limited treatment options that only manage symptoms rather than addressing the root cause. The condition is further complicated by the absence of diagnostic tools, lack of awareness in the public and medical communities, and stigma surrounding weight gain. As a result, many people remain undiagnosed, and the true prevalence of lipedema remains unknown.

Despite these barriers, there is a vibrant and engaged patient community, along with dedicated caregivers and researchers, who are committed to advancing lipedema research.

This Giving Smarter guide outlines the state of scientific understanding in lipedema research and highlights opportunities for philanthropic engagement in the space.